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MDA Celebrates - Congress Passes FAA Reauthorization

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mdausa.org

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MDA@comms.mdausa.org

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Fri, Jun 7, 2024 02:32 PM

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Greetings, here’s your June MDA newsletter Muscular Dystrophy Association celebrates a landmark

Greetings, here’s your June MDA newsletter [Muscular Dystrophy Association]( [MDA Monthly Newsletter] MDA Celebrates Historic Advancements in Accessible Air Travel as Congress Passes FAA Reauthorization [Accessible Air Travel]( Muscular Dystrophy Association (MDA) celebrates a landmark achievement in accessible air travel as Congress grants final passage to the Federal Aviation Administration (FAA) reauthorization bill - [H.R.3935, the Securing Growth and Robust Leadership in American Aviation Act](. The bipartisan effort, following months of negotiation, represents the most significant improvement in air travel for people living with disabilities in nearly 40 years and makes strides towards ensuring safer and more dignified air travel experiences for everyone. [Read the Full Announcement]( --------------------------------------------------------------- MDA’s Impact to End ALS Continues with Fourth Annual Lou Gehrig Day [Annual Lou Gehrig Day]( The MDA community participated in more than 17 Major League Baseball games across the country uniting ALS families, care center staff, and partners from organizations and corporations that are deeply invested in MDA’s mission-driven work to end ALS. [Read the Press Release]( --------------------------------------------------------------- Dutch Bros Raises $2.5M for MDA! [Dutch Bros Raises $2.5M for MDA]( Dutch Bros and its customers came together on Friday, May 17, for the 18th annual Drink One for Dane to support the Muscular Dystrophy Association (MDA) and its mission to end Amyotrophic Lateral Sclerosis (ALS). We are thrilled to share that the Dutch Bros Foundation has donated $2.5M to MDA. [Read More]( --------------------------------------------------------------- MDA Summer Camp Still Needs Volunteers! [Volunteer for MDA Summer Camp]( Volunteering at camp can change your life, just as it changes the lives of campers! “It was honestly the best week of my life. The happiness brought to the kids was so contagious that I've never felt this happy before. I will definitely be coming back next year and would recommend everyone to be a part of this beautiful experience.” - Camp Volunteer [Register Today]( Neuromuscular disease journeys don't need to be navigated alone — we're here to help! [VIsit the MDA Resource Center]( Mark Your Calendar: MDA Virtual Learning Series – Myasthenia Gravis [Myasthenia Gravis Virtual Learning Series]( Join experts from Stanford University, Loma Linda University, and Montefiore Medical Center who will provide an overview of advances in research and care, medication management, treatment expectations, and special considerations in pediatric MG. [Register for FREE Today!]( --------------------------------------------------------------- Former Collegiate Athlete Shares How to Stay Positive When Plans Change [Read Jayston's Story]( Jayston, a former collegiate-level football player living with [Lambert-Eaton Myasthenic Syndrome (LEMS)]( knows that learning to adjust, adapt, accept – and even embrace – new paths and passions when plans change is critical for maintaining mental health and over-all happiness. [Read Jayston’s Story]( --------------------------------------------------------------- New! Access Workshop on Genetic Testing [Access Workshop on Genetic Testing]( As new treatments are developed, genetic testing is growing ever more important. This on-demand, self-paced workshop reviews the basics, methods, and benefits of genetic testing. Insurance coverage, financial assistance programs, and what to do with the results are also covered. [Take the Workshop Today]( Read Quest Magazine. Listen to the Podcast. Follow the Blog. [Subscribe]( Volunteer Spotlight: Meet Maika! [Volunteer Spotlight: Meet Maika]( Maika became involved with MDA Summer Camp in 2014 when a college friend suggested the opportunity. Maika has volunteered at Grizzly Creek Ranch and Apple Canyon Center in California, wearing different hats—as a counselor and as one of the camp’s registered nurses. [Read About Maika]( --------------------------------------------------------------- Looking For More Ways to Get Involved? [Get involved with MDA]( Support MDA through a variety of engaging opportunities. Participate in local events, spearhead a community fundraiser, or consider a direct donation to fuel our efforts. Help us spread the word by amplifying our messages on social media, sharing our volunteer opportunities, or advocating for policy changes by contacting your legislators. [Make a Difference Today!]( --------------------------------------------------------------- ICYMI - [Considerations for Gene Therapy Logistics and Implementation]( - [Nonprofit MDA CFO attributes $5M cost reduction to streamlined operations, tech]( - [Extra Time: Dad's journey with ALS offers inspiring story for those fighting the disease]( - [MDA’s Pinup & Roundup Campaigns Kick Off Across the Nation to Support Summer Camp for Kids and Young Adults Living with Neuromuscular Diseases]( - [Rapid City Fire Department holds annual ‘Fill the Boot’ for Muscular Dystrophy]( - [CBS Sunday Morning: “All of Me” and the lighter side of disability]( - [Advocacy, Impact and Empowerment: The Charge Against Neuromuscular Diseases with Morgan Roth]( --------------------------------------------------------------- Upcoming MDA Events For all upcoming public events, please visit [mda.org/events](. MDA Learning Series: Myasthenia Gravis June 11 & 12, 2024 | 5 - 7 p.m. ET [Learn More]( All That Jazz Gala Thursday, June 27, 2024 | Albany, NY [Register Here]( Support Us Monthly For just $19 a month, you can be a champion for kids and adults with neuromuscular diseases. Donate today to support research and programs for people living with neuromuscular disease. [Donate Monthly]( --------------------------------------------------------------- [Facebook]( [Twitter]( [Instagram]( [LinkedIn]( [YouTube]( [MDA.org]( © 2024 Muscular Dystrophy Association, Inc.. All rights reserved. 1016 W Jackson Blvd #1073 Chicago, IL 60607 1-800-572-1717 [Unsubscribe]( | [State Fundraising Notices]( The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization. [View Online]( | [Subscription Center]( | [Privacy Policy](

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